Latest Activity

Chronic fatigue syndrome can affect people with Sarcoidosis
8 hours ago
my nursing asst. wouldn't give me the seasonal flu vaccine- contra-indications with the predisolone. Had my review the next day with the quack & he stomped off muttering that I was one of the designated people ( my Dad refuses to have it because h...
19 hours ago
I am afraid I was eventually diagnosed with CFS, and that was that. The sarc was found two years later after a medical to teach abroad- antibiotics given. It is a shame to what lengths we'll go to get a job (and ignore nagging doubts). The sarc wa...
20 hours ago
Leslie Tamas added a blog post
Users of the social networking site are urged to watch out for rogue emails containing links to the bogus page, which can give attackers access to their account. If the user does enter their details, the page redirects to an error message claimin...
yesterday
Penny
yesterday
yesterday
Lynne Clarke is now a member of UK Sarcoidosis Information & Support Group [Free Membership]
yesterday
yesterday
yesterday
yesterday
Janet Deacon and Mr Nick Paonessa are now friends
yesterday
yesterday
Hi, Well, the most common place for our Friendly Green Monster to appear is the lungs. However, I do know people who have it in the kidneys, liver, spleen, brain, spinal column, and many other places with absolutely NO activity in the lungs. The ...
on Friday
on Friday
on Friday
Merril Norman and John Robinson joined UK Sarcoidosis Information & Support Group [Free Membership]
on Friday
Hi I was told by my consultant not to have the Swine or ordinary flu jab. I am on immune supressants so that is probably why. I have also been told not to go anywhere where there are people as my immune sustem is non existant, so hubby has had the...
on Thursday
on Thursday
Chronic fatigue syndrome can affect people with Sarcoidosis
on Thursday
Cheers!
on Thursday

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The contents of the UK Sarcoidosis Information and Support Group website such as text, graphics, images, and other material, (“Content”) are for informational purposes only and do not render medical advice or professional services. The information provided through this site should not be used for diagnosing or treating any health problem or disease and it is not a substitute for professional care. The content is provided for information only. The use of all content is limited to starting a conversation with your health care provider
UK Sarcoidosis Information and Support Group is not responsible for any injury, loss, damage or expense incurred by any individual as a result either directly or indirectly of any information published on this website. Never disregard professional medical advice or delay in seeking it because of something you have read on the UK Sarcoidosis Information and Support Group Website.
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Remember do not make assumptions or take chances - always talk to your doctor first.
This is a UK membership only website

Forum

Trevor  C.

Swine flu jab 9 Replies

Hi All At 10-07 monday morning I am going to have the swine flu jab,I dont know if I am doing the right thing but I dont want to get the swine flu as I think knowing my luck I would get it bad.Hope...

Tagged: Jab, Flu, Swine

Started by Trevor C. in MY STORY. Last reply by Doug Baxter 19 hours ago.

flexibex

Floaters in eyes 11 Replies

I've noticed over the last few years that I get floating dots in my eyes. I've put it down to being run down and tired but I am wondering if anyone else get them? I'm battiling with a cold at the m...

Tagged: Eyes

Started by flexibex in MY STORY. Last reply by penny 1 day ago.

Denise Tatham

Sarcoid mentioned on sky one a programme called House 5 Replies

hi has anyone watched House on sky one it as mentioned Sarciod for the past 3-4 programmes.

Started by Denise Tatham in Uncategorized. Last reply by Owen Orr Nov 17.

Sara

Epilepsy and sarcoid 3 Replies

Hi Has anyone had Epilepsy through Sarcoid, as I have had 2 seizures in the last month (never had any before in my life), and just wondered if it could be connected-although neurologist doesn't th...

Started by Sara in MY STORY. Last reply by Owen Orr Nov 17.

Grace Andrews

NeoroSarcoidosis 12 Replies

My name is Grace Andrews, I am 38 years old I was diagnoised with having Sarcoidosis in February 1994. In June of last year I was diagnoised with nerosarcoidsis after being admitted into hospital (...

Started by Grace Andrews in MY STORY. Last reply by ele Nov 16.

Anne Conlon

Specialist's and Doctors, let us know about how they are treating us 13 Replies

Hi all i thought i would start a discussion on how we are being treated by our specialists and doctors are they good, do they know anything about sarcs or are they useless. Anne

Started by Anne Conlon in Uncategorized. Last reply by Leslie Tamas Nov 13.

jean

Stomach Inflammation 8 Replies

Hello All. I hope you are all feeling a bit better. I have sarcoid of skin and lungs also pulmonary fibrosis and mixed connective tissue disease. Recently I have been having trouble swallowing food...

Started by jean in Uncategorized. Last reply by Janet Deacon Nov 13.

lisa mays

memory 10 Replies

can some 1 tell me plzzzz if sarcoid has changes in your memory as in memory loss things all a muddle i have noticed some changes this last week or 2 and its really upsetting me and i dont see my d...

Started by lisa mays in MY STORY. Last reply by Jacqui Nov 12.

janice bovington

facial bilateral palsy 12 Replies

Does anybody have bilateral facial palsy and if so how long did it last.

Started by janice bovington in MY STORY. Last reply by cosmic-al Nov 11.

Ruth

dry skin rash on face 2 Replies

Hi - does anyone else have very dry, rough tight skin on face? I was taking lonsoprazole but stopped taking them today as I don't know if they have caused this rash on my face. Any ideas would be w...

Started by Ruth in Untitled Category. Last reply by Ruth Nov 10.

Links to other sarcoidosis sites

I have entered links to other sarc sites, so please feel free to let us know of any others we can add to the list.

Dave




http://irishsarcnetwork.ning.com ( A new global ning site based in Ireland)
http://www.inspire.com/groups/stop-sarcoidosis ( Another global sarc support group)

http://groups.msn.com/SARCOIDCONNECTION (A great global site based in the USA)

http://www.sarcoidcenter.com

http://www.sarcoidosisonlinesites.com
http://www.snaregistry.org/ Sarcoid Registry
 
 

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Leslie Tamas

Every Group Member should look or read this Blog post

Users of the social networking site are urged to watch out for rogue emails containing links to the bogus page, which can give attackers access to their account.

If the user does enter their details, the page redirects to an error message claiming an "incorrect email/password combination".

"This fraudulent URL is probably being spread through emails and through search engine optimisation techniques," said Luis Corrons, technical director of PandaLabs.

"In any event, once cyber-crooks have the… Continue

Posted by Leslie Tamas on November 21, 2009 at 7:23pm

We are a sarcoidosis information and support group for sufferers and their carers which has been set up specifically for UK membership only.

 

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