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13 hours ago
colette added a discussion
All i am looking for is information on weather or not Sarcoid can return and if it is worse the second time around.  I ask because my husband who is 52 years of age was diagnosed 10 years ago and has had all the treatment and follow up visits to his…
17 hours ago
19 hours ago
yesterday
Jay Any meet-ups in suffolk/norfolk?
yesterday
Jay updated their profile
yesterday
Davinder Basuita is now a member of UK Sarcoidosis Information & Support Group [Free Membership]
on Sunday
melanie walker and vicky jones are now friends
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...Ummm.. Its kind of in the middle - pituitary - I have 2 tiny 1mm tumours in there... I thought that this was causing my eye problem and unexplained weight gain.. Go onto the Pititary website... or NHS Regards Doreen
on Sunday
on Sunday
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on Sunday
Chronic fatigue syndrome can affect people with Sarcoidosis
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maureen carey and doreen gerrard-atkinson joined UK Sarcoidosis Information & Support Group [Free Membership]
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Forum

colette

hubby

All i am looking for is information on weather or not Sarcoid can return and if it is worse the second time around.  I ask because my husband who is 52 years of age was diagnosed 10 years ago and has…

Started by colette in MY STORY 17 hours ago.

Graeme Stewart

Early retirement through ill health? 8 Replies

Hi Guys, I was diagnosed with sarcoids in 2004 and have been on steroids and various other medicines ever since. I display all the typical symptoms associated with sarcoids and have 30% scarring to m…

Started by Graeme Stewart in MY STORY. Last reply by William lauchlan Feb 5.

michael lepage

anybody with sarc in the skipton area 2 Replies

hi just wanted to see if i could find somebody to talk too who knows how it feels to go through this thing that is sarc, its very difficult to make people understand how disabling it can be. Great si…

Started by michael lepage in MY STORY. Last reply by michael lepage Feb 4.

Brenda Donnachie

Specialist help in Scotland 6 Replies

Hi does anyone know the name of a specialist in SARC based in Scotland and how I would go about contacting them. Otherwise where would I look for someone specialising in this field if no one has had…

Started by Brenda Donnachie in MY STORY. Last reply by William lauchlan Feb 3.

teresa e freeman

sarcoid in my lungs 2 Replies

Hi, I have damage in my lungs from sarcoid from way back 1992 it has been managed ever since with steroids and inhalers... up until a few days ago when I started to cough up blood.Scary to say the le…

Started by teresa e freeman in MY STORY. Last reply by teresa e freeman Feb 3.

PETE BARTON

What else????

I have not been on this site for a long time due to having two operations on my coronary arteries. I have also been diagnosed with steroid induced diabetes and am on tablets for that. I already had a…

Started by PETE BARTON in MY STORY Feb 3.

Andrew Moyes Wright

Skin inflammations 4 Replies

Hi, I was just wondering if anyone else has these round shaped inflammations (a bit like ringworm! on occasions) on their body or face, and if there are any good creams to help them go away or stop i…

Started by Andrew Moyes Wright in MY STORY. Last reply by Susanne Davis Feb 1.

Elizabeth N Martin

long haul 4 Replies

Does anyone have thoughts on long-haul flights?  I'm not at all sure it's a good idea... any comments?

Started by Elizabeth N Martin in MY STORY. Last reply by Elizabeth N Martin Jan 28.

Dafydd Edwards

Just an idea suggestion!! 3 Replies

Sorry not posted anything for a while been busy catching up with this n that n time has flown by!! My sarc currently seems to be better than it has been still having extreme fatigue and a tender ches…

Started by Dafydd Edwards in MY STORY. Last reply by John Parkin Jan 24.

Dave Wright

CAN ANYONE HELP?? (Posted on behalf of Karen Wilcox) 1 Reply

At 12:08am on January 16, 2010, karen wilcox said… hiya i wonder if any1 can give me any help my brother was feelin quite ill and went to the docs they sent him for tests and they assumed he had sarc…

Started by Dave Wright in MY STORY. Last reply by Cheryl Green Jan 24.

Links to other sarcoidosis sites

I have entered links to other sarc sites, so please feel free to let us know of any others we can add to the list.

Dave




http://irishsarcnetwork.ning.com ( A new global ning site based in Ireland)
http://www.inspire.com/groups/stop-sarcoidosis ( Another global sarc support group)

http://groups.msn.com/SARCOIDCONNECTION (A great global site based in the USA)

http://www.sarcoidcenter.com

http://www.sarcoidosisonlinesites.com
http://www.snaregistry.org/ Sarcoid Registry
 
 

Blog Posts

janet haynes

hello!

Hi there , do I call you sarcs?
Sounds very trekky for some reason.
II am being investigated at present for sarcoidosis among other things and just wanted to make contact with the group and say hello.
I have Fibromyalgia but have for a long time thought there was something else, but you know what it is like to get a diagnosis.......................
This has led me to give up trying to work on a permanent basis because I cannot guarantee how I am going to feel from day to day. Instead i am studyi… Continue

Posted by janet haynes on January 13, 2010 at 12:16pm — 3 Comments

We are a sarcoidosis information and support group for sufferers and their carers which has been set up specifically for UK membership only.

 

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