We are a TOTALLY FREE OF CHARGE sarcoidosis information and support group which has been formed to help sufferers and their carers/families understand more about this little known disease. We offer free membership to those in the UK, and directly beneath this box is more information about the site. We would recommend that rather than pay for membership to other sites, donations or sponsorship be directed to the British Lung Foundation, where you can simply stipulate that you wish any payments go toward sarcoidosis research. This way you can be certain that ALL of your donation is utilised to its utmost effect and not swallowed up by administration cost etc.
Last October we had our Sarcoidosis Awareness Day where many members emailed their local MPs, Health Authorities and Government Ministers. It was so successful that the DWP now include sarcoidosis in their listings with advice about claiming DLA etc. It is now also better described within the NHS and I thank everyone who took part in this action for making sure that many of those who had never heard of this disease, now know considerably more about it


All visitors/members are advised to read the disclaimer which is at the bottom of this column.
For those who would like to make contact with either Anne Conlon or David Wright, their details are below.
ANNE CONLON - email anne-conlon@hotmail.co.uk Telephone 01263720735
DAVE WRIGHT - email david.wright1952@ntlworld.com Telephone 01612845444


Please note only the main page is available until membership is gained. Simply create a new membership in minutes which is automatically granted but is then quickly checked. Then all the site functions are accessible.
THIS SITE IS ONLY OPEN FOR MEMBERSHIP TO THOSE FROM THE UK

Your site managers are Anne, Carol, Dave, Fred and Wayne who are all happy to help you with any questions you may have. Any suggestions to improve the site are welcomed. We formed this site for UK folk, to discuss matters relevant to our country. We also actively promote and provide links to other Sarcoidosis Support Groups where we can all go for further information or converse with our friends from other Countries. We want our members to participate in discussions, giving us your views, opinions, questions, replies and at the same time provide some fun and laughter. We have many features including the forum, where we invite your questions, comments and opinions. We have a Groups section where you can start or join a group of your choice. Photos: post any family, funny or scenic photos. Videos, funny, serious or home made. Chat: a great new introduction where you can chat to anyone online who wants to. Events: why not make public any event you are arranging which could be of interest to our members.Feeling a bit down and want cheering up, then have a look at the forum under "jokes or funny stories", or if you know any, just add them.
We want to make this a friendly place to come to where you feel at ease with no obligations. Just look through the site and if you want to comment on anything, then that's great because we will thrive on the involvement of our members and their input, but also, feel free to read through the postings and look for anything that may be of interest.

This website is designed by UK Sarcoidosis Information and Support Group, for Sarcoidosis sufferers, their families, and other interested parties. We are an on-line Sarcoidosis Chat and Support Group intended for those interested in Sarcoidosis to discuss general issues of this disease and to be there for each other to offer compassion and support. We offer our experiences only; however, we are not doctors or practitioners. Therefore before you make any decisions or form any opinion you should talk to your doctor about your individual circumstances first.

The contents of the UK Sarcoidosis Information and Support Group website such as text, graphics, images, and other material, (“Content”) are for informational purposes only and do not render medical advice or professional services. The information provided through this site should not be used for diagnosing or treating any health problem or disease and it is not a substitute for professional care. The content is provided for information only. The use of all content is limited to starting a conversation with your health care provider.
UK Sarcoidosis Information and Support Group are not responsible for any injury, loss, damage or expense incurred by any individual as a result either directly or indirectly of any information published on this website. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. UK Sarcoidosis Information and Support Group disclaim any liability whatsoever for any documentation, information, programs, software, or other material which is or may become a part of this website. UK Sarcoidosis Information and Support Group do not warrant or guarantee that the information will not be offensive to any user. Users are hereby put on notice that by accessing and using this website, the user assumes the risk that the information and documentation contained in the website may be offensive and/or may not meet the needs and requirements of the user and/or may be inaccurate. If you think you may have a medical emergency, call your health care provider, doctor or emergency service immediately.

The site managers reserve the right to delete any messages that appear to be offensive or inappropriate.

Remember do not make assumptions or take chances - always talk to your doctor first.

All material on this site is copyrighted and cannot be reproduced in part or in full without the prior permission of the site creator.

We have recently had to ban a member because of repeated aggression towards others and continual foul language on the main discussions. The decision was not taken lightly but all Site Managers felt action needed to be taken to ensure the site maintains it's original friendly atmosphere. There were also frequent references to other sites offering "alternative" treatment where people were ridiculed by this person for not considering that "regime" We have seen what has happened to other sites where these types of arguments have escalated, so they will not be allowed to "take over" this site. We reserve the right to delete any topic which provokes argumentative and offensive discussion.